Paediatric Palliative Care Clinical Network
Welcome to the Paediatric Palliative Care Clinical Network (PPCCN) My Health Hub webpage. The PPCCN is part of the New Zealand Child & Youth Clinical Network (NZCYCN)
New Zealand Child & Youth Clinical Network
The New Zealand Child and Youth Clinical Network (NZCYCN) comprises of ten Networks that focus on a range of speciality areas. All Networks aim to provide health professionals with resources to improve practice, and to promote the delivery of equitable child and youth health services that improve health outcomes for all tamariki and rangatahi.
Paediatric Palliative Care Clinical Network
The role of the Clinical Network is to provide clinical leadership and oversight of the provision of services for children and young people with life-limiting conditions, and their families and whānau in New Zealand. The PPC clinical network provides monthly education forums.
For more details click here.
Upcoming Webinars
FROM BURNOUT TO PARTNERSHIP
ADVOCACY-DRIVEN COLLABORATION AND GOAL SETTING IN PAEDIATRIC PALLIATIVE CARE
DATE: Tuesday 17 June
TIME: 8.00 – 9.00am
PRESENTED BY: ROXIE SAWTELL, Clinical Nurse Specialist | Rainbow Place
This presentation shares an update on the ‘Carer Stress and Burnout Tool’ for our families
at Rainbow Place. It outlines the real-time rollout across our service and introduces the early stages of Roxie’s master’s research project. Exploring how improved collaboration and shared goals of care can empower families and strengthen support for health professionals involved in the child’s care.
Recorded Webinars
After Death
Held on: Tuesday 15th April 2025
JANET MIKKELSEN
Funeral Director, Aroha Funerals
Many families assume health professionals understand what happens after death. This talk
explores body care, family support, funerals, bereavement, cultural needs, and available
resources.
Te Mana o te Awa – The Power of the River
Held on: Tuesday 18th February 2025
ELLYN PROFFIT, Clinical Nurse Specialist
Adolescent & Young Adult Cancer Service
Topics included:
• Introduction to the Te Awa (The River) metaphor
• The value of using the metaphor in supporting rangatahi through cancer
• How to use the turbulent river analogy to discuss coping, relationships, and emotional impact
• Feedback on the metaphor from patients, whānau, and professionals.
Carer stress and burnout
Held on: Tuesday 17th September 2024
Roxie Sawtell, CNS Rainbow Place Children’s Hospice, Waikato
Carer stress and burnout among parents/whanau of children with life-limiting conditions significantly affect families at Rainbow Place. A quality improvement project was undertaken to enhance carer support, aligning with Te Whare Tapa Wha and Hospice values.
This presentation discusses the strategy developed, which includes a standardized assessment tool, and invites feedback on further development.
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