Paediatric Palliative Care Clinical Network
Welcome to the Paediatric Palliative Care Clinical Network (PPCCN) My Health Hub webpage. The PPCCN is part of the New Zealand Child & Youth Clinical Network (NZCYCN)
New Zealand Child & Youth Clinical Network
The New Zealand Child and Youth Clinical Network (NZCYCN) comprises of ten Networks that focus on a range of speciality areas. All Networks aim to provide health professionals with resources to improve practice, and to promote the delivery of equitable child and youth health services that improve health outcomes for all tamariki and rangatahi.
Paediatric Palliative Care Clinical Network
The role of the Clinical Network is to provide clinical leadership and oversight of the provision of services for children and young people with life-limiting conditions, and their families and whānau in New Zealand. The PPC clinical network provides monthly education forums.
For more details click here.
Upcoming Webinars
COMING UP: TRUTH TELLING
ENABLING YOUNG PEOPLE AND
THEIR GROWN UPS TO TALK
DATE: Tuesday 18 March
TIME: 8.00 – 9.00am
Kathryn will discuss how families try to protect young people from ‘too much information’ about their serious, progressive, or even life-threatening illness. The young person has often guessed and can be frightened by their inability to discuss their fears. She will explore how we can enable young people and their grown-ups to talk about what they are thinking about already, to support more transparent communication.
Recorded Webinars
Carer stress and burnout
Held on: Tuesday 17th September 2024
Roxie Sawtell, CNS Rainbow Place Children’s Hospice, Waikato
Carer stress and burnout among parents/whanau of children with life-limiting conditions significantly affect families at Rainbow Place. A quality improvement project was undertaken to enhance carer support, aligning with Te Whare Tapa Wha and Hospice values.
This presentation discusses the strategy developed, which includes a standardized assessment tool, and invites feedback on further development.
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