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LOUISE SUE, PGcert PG Dip Hlth Sci, MNurs, PG Cert Professioanl Supervision. Keyworker (CNS) AYA Cancer Service
In Aotearoa, adolescents and young adults (AYAs) experiencing serious illness have lacked age-appropriate and culturally relevant resources to support them and their whanau. Recognising this significant gap, the AYA Cancer Network Aotearoa established the AYA Palliative Care Working Group. This group unites experts from AYA cancer services, NGOs, hospices, and both paediatric and adult palliative care, all dedicated to improving the quality of care and support provided. Through extensive consultation with healthcare professionals, young people, bereaved whanau, and Maori health advisors, the group has developed two new resources: ‘Ka whai awa, ka whai ara: A practical guide for young people living with a serious illness and ‘Ma toku reo e tohu: A young person’s guide for decision making when dying’, along with accompanying supportive documents and practical templates. Specifically designed for young people aged 12–29 years with any serious illness, these resources address the emotional and practical realities faced when living with a serious illness and navigating end-of-life decisions.
In this presentation, the AYA Palliative Care Working Group will share insights into the collaborative development process, introduce the resources, and outline our next steps for implementation.